Who we are
- About us
- Board
- Members
- Bylaws
Information on 22q11
News
Events
Contact

Who we are
- About us
- Board
- Members
- Bylaws
Information on 22q11
News
Events
Contact

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About us

As a supranational European network of 14 national organizations, we aim to bring awareness to the 22q11 deletion syndrome by promoting international scientific research and support those affected and families. By doing so, we wish to improve the lives of those who suffer from the “least known genetic defect”.

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