My name is Aine, I am 33 years old and I live in Ireland. I was diagnosed with 22q11 at 21 years old. Growing up I had textbook symptoms, I…
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Every two years, 22q11 Europe organizes a conference in coordination with a local 22q11 association. The objective of this conference is to keep patients and relatives informed with recent researches,…
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Hello, My name is Audrey and my husband is Sebastien. We are the parents of a 5 year old little boy, named Jonas. We learned that he was a carrier…
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Hello, my name is Gwenaelle, I’m 29 years old and I’ve been lucky enough to have two children (and the best choice): a 7 year old boy, Enzo, and a…
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You can still register for the 4th European 22q11 Congress! Registration link After a long time of only virtual encounters and lockdown, the 4th European 22q11 Congress will take place…
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My name is Nathalie and my companion Samuel and I have a three year old boy, Andrea, who has the 22q11 deletion syndrome. We found out about it on the…
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We are very happy to announce that Stichting Steun 22q11 has joined 22q11 Europe! Stichting Steun 22q11 raises awareness about 22q11 in the Netherlands, through information, events, projects and contributions to…
Charlotte was the 3rd born child, 1st girl and was the last piece of our family puzzle. She was born at 40 weeks no complications. Initially as a newborn i…
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