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22q11 Stories

These testimonials are part of our “22q11 Story” campaign launched on our Facebook page to help raise awareness and share what it is like to live with the 22q11 syndrome. Discover these inspiring stories…

  • My name is Aine, I am 33 years old and I live in Ireland. I was diagnosed with 22q11 at 21 years old. Growing up I had textbook symptoms, I…

  • Hello, My name is Audrey and my husband is Sebastien. We are the parents of a 5 year old little boy, named Jonas. We learned that he was a carrier…

  • Hello, my name is Gwenaelle, I’m 29 years old and I’ve been lucky enough to have two children (and the best choice): a 7 year old boy, Enzo, and a…

  • Charlotte was the 3rd born child, 1st girl and was the last piece of our family puzzle. She was born at 40 weeks no complications. Initially as a newborn i…

  • My name is Nathalie and my companion Samuel and I have a three year old boy, Andrea, who has the 22q11 deletion syndrome. We found out about it on the…

  • My name is Rachel, I am 29 years old. I am from Dunkirk, France. My syndrome was recognized at birth following congenital abnormalities called Tetralogy of Fallot. These caused long…

  • Hello, my name is Claire, I am 42 years old. I have been living in Tours, France, for 2 years now, and I have been in a relationship for 10…

  • Hello! My name is Nele Gabriels and I am 17 years old.  I have known all my life that I have 22q11 which makes this “normal” for me. I have…

  • Kim’s testimony, Mika’s mother and founder of “Support 22q11 Foundation” Birth There I was, full of emotions but without the child that I had just brought into the world. Mika…

  • Hi ! My name is Hanna, and I have 22q11ds. I only found out that I had this syndrome when I gave birth to my eldest daughter, at the age…

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