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22q11 Stories

These testimonials are part of our “22q11 Story” campaign launched on our Facebook page to help raise awareness and share what it is like to live with the 22q11 syndrome. Discover these inspiring stories…

  • My name is Nathalie and my companion Samuel and I have a three year old boy, Andrea, who has the 22q11 deletion syndrome. We found out about it on the…

  • My name is Rachel, I am 29 years old. I am from Dunkirk, France. My syndrome was recognized at birth following congenital abnormalities called Tetralogy of Fallot. These caused long…

  • Hello, my name is Claire, I am 42 years old. I have been living in Tours, France, for 2 years now, and I have been in a relationship for 10…

  • Hello! My name is Nele Gabriels and I am 17 years old.  I have known all my life that I have 22q11 which makes this “normal” for me. I have…

  • Kim’s testimony, Mika’s mother and founder of “Support 22q11 Foundation” Birth There I was, full of emotions but without the child that I had just brought into the world. Mika…

  • Hi ! My name is Hanna, and I have 22q11ds. I only found out that I had this syndrome when I gave birth to my eldest daughter, at the age…

  • My name is Angelina and I am 41 years old. I always knew I was different from the others. I remember as a child I would tell my mother: “No…

  • My arrival on earth has been marked with strangeness. I, who doesn’t like to do like everyone else, found myself with a lot on my hands! Why was that? In…

  • My name is Mathilde Fleury, I am 27 years old and I come from Dunkirk, France. My syndrome was detected at birth. My mother had to watch me constantly because…