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22q11 Stories

These testimonials are part of our “22q11 Story” campaign launched on our Facebook page to help raise awareness and share what it is like to live with the 22q11 syndrome. Discover these inspiring stories…

  • Hello, I’m Leonie, I’m almost ten years old and I live in Colligny, a small village in France. I was diagnosed with 22q11 syndrome at the age of 26 months…

  • Does happiness mean being someone ? I’m not an engineer, I’m not a writer, I don’t have a B.A. or even a college diploma. However, that does not make me…

  • My name is Cristina, I am from Ciudad Real and, most importantly, I am the mother of two boys. One of them is affected by 22q11 deletion, his name is…

  • Our purpose in life: Adriana’s happiness. When you become pregnant you always have a fundamental objective, that is for the baby to be healthy. In our case, the pregnancy went…

  • My name is Aine, I am 33 years old and I live in Ireland. I was diagnosed with 22q11 at 21 years old. Growing up I had textbook symptoms, I…

  • Hello, My name is Audrey and my husband is Sebastien. We are the parents of a 5 year old little boy, named Jonas. We learned that he was a carrier…

  • Hello, my name is Gwenaelle, I’m 29 years old and I’ve been lucky enough to have two children (and the best choice): a 7 year old boy, Enzo, and a…

  • Charlotte was the 3rd born child, 1st girl and was the last piece of our family puzzle. She was born at 40 weeks no complications. Initially as a newborn i…

  • My name is Nathalie and my companion Samuel and I have a three year old boy, Andrea, who has the 22q11 deletion syndrome. We found out about it on the…

  • My name is Rachel, I am 29 years old. I am from Dunkirk, France. My syndrome was recognized at birth following congenital abnormalities called Tetralogy of Fallot. These caused long…

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