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  • Hello, this is my story with 22q11 syndrome. I was born on 18/08/1991. Around the age of 6, I had learning difficulties in math and comprehension problems, but I didn’t…

  • If you haven’t already done so! Here’s a reminder to take part in 22q11 Day as members, local associations or citizens. On November 22nd, we celebrate « 22q11 Day »…

  • On November 22nd, we celebrate « 22q11 Day » by supporting the European movement to light up iconic buildings in red to raise awareness for 22q11 syndrome. Just like previous…

  • Aria is a 3 year old girl from Faroe Islands. The start of Aria’s life was a difficult time for her. When Aria was born, the nurse heard and saw…

  • Ana was born as a seemingly healthy child, apart from umbilical hernia she had at the birth, but soon the first problems arose. Because of her failure to thrive we…

  • My story with Di George syndrome begins in 2009 following a consultation with a pediatrician for my 3 year old daughter.We consulted a pediatrician because my daughter, born in 2006,…