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  • After some months of hardwork, we are proud to present our MOOC (Massive Open Online Course) about 22q11DS. Thanks to Stephan Eliez, Maude Schneider, Thérèse van Amelsvoort, Ania Fiksinski, Corrado…

  • On the occasion of the 22q11 awareness day and the release of the MOOC, we will organize next Tuesday (November 22nd at 8pm) a live session animated by different speakers…

  • Altered developmental trajectories of verbal learning skills in 22q11.2DS : associations with hippocampal development and psychosis. In this video, Caren Latrèche presents the results of a recently published study on…

  • My name is Cristina, I am from Ciudad Real and, most importantly, I am the mother of two boys. One of them is affected by 22q11 deletion, his name is…

  • The videos of the keynotes given at the 2021 Berlin conference are now available online : Introduction : Prof. Dr. Maude Schneider Medical, speech therapy + audiological aspects of language…

  • Our purpose in life: Adriana’s happiness. When you become pregnant you always have a fundamental objective, that is for the baby to be healthy. In our case, the pregnancy went…

  • The EURORDIS survey programme Rare Barometer has launched an international survey on the journey to diagnosis for people living with a rare disease, with the support of Rare Diseases International (RDI). The survey is…