Hello, my name is Claire, I am 42 years old. I have been living in Tours, France, for 2 years now, and I have been in a relationship for 10 years!
At the age of 4 I had a ventricular septal defect (VSD), which in short is a small hole between the “clean blood” and the “dirty blood”. I also had eye operations twice because today I have -20 myopia and I am astigmatic, so I have to wear lenses and glasses. A real mole!
At the age of 10, I had problems with my feet where they curled up on themselves and made it difficult for me to walk because my left knee twisted all the time when I was walking .... We went through a big operation on it and we refocussed them!
Much much later, at the age of 35, I was found to have only a single kidney (I was glad to hear that hum...). I also had a pulmonary embolism two years ago and I could have died but my doctor saved me! Since then I had facial neuralgia, unexplained sternum pain, kidney stones in my only kidney, arthritis, and now I'm suspected of syringomyelia...
My experience with school was pretty bad. I never succeeded in school and I tried to commit suicide for school bullying… When I was a baby I didn’t eat much, and I only weighed 2kg at birth .... I do not eat better today! A little anyway lol !!
I always told my mother that I didn't feel like everyone else ... not like my older sister who was fine!
And last December 2020 I was diagnosed with microdeletion syndrome 22q11 .... I was a little shocked but not that much. I was relieved to finally know what I had! And not a fibromyalgia that I was told for 10 years.
Thanks for reading me !