Our purpose in life: Adriana’s happiness. When you become pregnant you always have a fundamental objective, that is for the baby to be healthy. In our case, the pregnancy went…
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The EURORDIS survey programme Rare Barometer has launched an international survey on the journey to diagnosis for people living with a rare disease, with the support of Rare Diseases International (RDI). The survey is…
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On 22 November 2021, Europe, US and Canada were lit up in red to raise awareness about 22q11 syndrome! Many cities took part in this day to raise awareness about…