My name is Rachel, I am 29 years old. I am from Dunkirk, France. My syndrome was recognized at birth following congenital abnormalities called Tetralogy of Fallot. These caused long…
Latest Posts
-
Today, we are extremely happy and proud to share with you the news that Anna Maria (Ania) Fiksinski has obtained the grade of Ph.D in psychology from UMC Utrecht (Utrecht…
-
Hello, my name is Claire, I am 42 years old. I have been living in Tours, France, for 2 years now, and I have been in a relationship for 10…
-
On 22 November, Europe was lit up in red on 22q11 Day! Many European cities and Philadephia USA took part in this day to raise awareness of the microdeletion syndrome.…
-
At the 3rd international conference on 22q11 in Barcelona in November 2019, Yaffa Serur (Psychiatric Division of Children and Adolescents – Sheba Medical Center) covered the impact of the environment…
-
At the 3 rd international conference on 22q11 in Barcelona in November 2019, Clémence Feller (University of Geneva) addressed the issue of projection in the future with individuals with 22q11DS.…
-
Kim’s testimony, Mika’s mother and founder of “Support 22q11 Foundation” Birth There I was, full of emotions but without the child that I had just brought into the world. Mika…
Hello! My name is Nele Gabriels and I am 17 years old. I have known all my life that I have 22q11 which makes this “normal” for me. I have…