Hello, I’m Leonie, I’m almost ten years old and I live in Colligny, a small village in France. I was diagnosed with 22q11 syndrome at the age of 26 months…
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Eurordis, the European alliance for people living with a rare disease in Europe, is conducting its new Rare Barometer survey on the opinion of people living with rare diseases on…
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Does happiness mean being someone ? I’m not an engineer, I’m not a writer, I don’t have a B.A. or even a college diploma. However, that does not make me…