On 22 November, Europe will light up in red on 22q11 Day!
November 22nd is the International 22q11 Day, a European movement to raise awareness about 22q11 microdeletion syndrome by illuminating many buildings in red across Europe. Many cities will take part in this day to raise awareness about the microdeletion syndrome.
22q11 day has been happening for several years and is becoming increasingly popular. More and more public and private buildings are lit up in red to raise awareness. More than 8 countries and 60 cities in Europe have participated in previous editions.
Why raise awareness about it?
The cheer diversity of the symptoms of 22q11 patients makes a diagnosis very difficult. In fact, 50% of 22q11 patients are never diagnosed. Yet, an early diagnosis of 22q11 can lead to a much better life for affected individuals as earlier treatments of symptoms can curtail their severity. Besides, early diagnosis allows parents to better prepare the arrival of their child, it helps health professionals to better adapt their treatments and educators to better adapt the educational environment. Raising awareness with the public will thus improve the diagnosis and treatment of the disease.
Do not hesitate to contact your local association if you wish to participate in the action!