We are conducting a survey targeted at adults affected by 22q11. With this survey, we are aiming to better understand your needs and how we can offer support. If you…
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New publications
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It has been two years since we shared the previous version of this major document. There are two versions: Updated clinical practice recommendations for managing adults with 22q11.2 deletion syndrome …
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The 2022 22q11 Awareness Day was a blast throughout Europe and beyond ! Local organizations displayed an impressive level of creativity in finding ways to bring the public’s eye on…
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On the occasion of the 22q11 awareness day and the release of the MOOC, we will organize next Tuesday (November 22nd at 8pm) a live session animated by different speakers…
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The 22th November is the international day for 22q11 deletion syndrome. We invite public and private organizations to share the information by illuminating their buildings in red or to share…
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After some months of hardwork, we are proud to present our MOOC (Massive Open Online Course) about 22q11DS. Thanks to Stephan Eliez, Maude Schneider, Thérèse van Amelsvoort, Ania Fiksinski, Corrado…
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Altered developmental trajectories of verbal learning skills in 22q11.2DS : associations with hippocampal development and psychosis. In this video, Caren Latrèche presents the results of a recently published study on…
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Our purpose in life: Adriana’s happiness. When you become pregnant you always have a fundamental objective, that is for the baby to be healthy. In our case, the pregnancy went…
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On 22 November 2021, Europe, US and Canada were lit up in red to raise awareness about 22q11 syndrome! Many cities took part in this day to raise awareness about…
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4th European 22q11 Congress with extended programme 20-21.11.2021 In lectures and workshops on the most important topics related to DS 22q11, the most renowned experts from Germany, Europe and the…
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