On November 22 and 23, 2025, the European 22q11 conference took place in Brussels
The European 22q11 Conference is a truly unique event, bringing together more than 300 participants — patients, families, and leading experts — in an open, supportive, and informative environment
It was a valuable opportunity to meet healthcare professionals, listen to insightful speakers, and learn from experts who presented their research and discussed key topics related to the syndrome
Mental health, sleep, orthopedics, scoliosis, siblings, family dynamics, diagnosis, professional inclusion — many essential themes were explored, offering everyone the chance to discover new research and engage in meaningful discussions.
Find all the presentations below
- After the 22q diagnosis : supporting your child(ren) and your Family - Dr Linda Campbell & Dr Sasja Duijf
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What is 22q11.2 deletion syndrome (22q11DS) & guidelines for the management of children and adolescents - Sólveig Óskarsdóttir MD, PhD
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Sleep in 22q11.2 Deletion Syndrome What should we know and what should we do? - Corrado Sandini, MD, PhD
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Dopamine in 22q11 - Jeltje Spapens, PhD student
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Orthopediccare in 22q11.2DS syndrome - Prof. Dr. Ralf Stücker
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Impact of 22q11 DS on family (parentsandsiblings) - Mrs. Geert Vandenbosch, Prof. Dr. Ann Swillen , Dr. Ines Van keer
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Functioning in adulthood and integrative care - Claudia Vingerhoets, PhD
Find all the short presentations below
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Language development in 22q11.2 Deletion Syndrome from preschool to school-age and in adolescence : evidence from two longitudinal studies - Tessel Boerma
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When we connect first, big feelings feel smaller - Linda Campbell, PhD
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Sleep Detectives: Co-design with families with 22q11.2 Deletion Syndrome
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When parents are okay, children are okay -Sasja Duijff, PhD
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Effectiveness, side effects, and cognitive outcomes of SSRIs in 22q11DS (A MULTICENTER STUDY) - Caren Latrèche
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The origin of 22q11.2 deletion syndrome - Senne Meynants
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Co-Production of Resources for 22q11DS –Enhancing Quality of Care, Communication & Health Literacy for Young People - Wesley Mulcahy
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The importance of psychoeducation on 22q11 DS at home, school and work: The Leuven Experience - Ann Swillen, PhD
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The Role of Orthopaedic Conditions in Lower Extremity Pain and Exercise Intolerance in Children with 22q11.2 Deletion Syndrome - Femke van den Helder, Michiel Houben
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Spinal Care in a National 22q11.2 Deletion Syndrome Population : A Retrospective Cohort Study - Jessica Vasantharasan, Suzanne Kelleher, Wesley Mulcahy, Veselina Gadancheva, Fiona McNicholas