We are very happy to announce that Stichting Steun 22q11 has joined 22q11 Europe! Stichting Steun 22q11 raises awareness about 22q11 in the Netherlands, through information, events, projects and contributions to…
News
-
-
My name is Rachel, I am 29 years old. I am from Dunkirk, France. My syndrome was recognized at birth following congenital abnormalities called Tetralogy of Fallot. These caused long…
-
Today, we are extremely happy and proud to share with you the news that Anna Maria (Ania) Fiksinski has obtained the grade of Ph.D in psychology from UMC Utrecht (Utrecht…
-
Hello, my name is Claire, I am 42 years old. I have been living in Tours, France, for 2 years now, and I have been in a relationship for 10…
-
On 22 November, Europe was lit up in red on 22q11 Day! Many European cities and Philadephia USA took part in this day to raise awareness of the microdeletion syndrome.…
-
Hello! My name is Nele Gabriels and I am 17 years old. I have known all my life that I have 22q11 which makes this “normal” for me. I have…
-
At the 3rd international conference on 22q11 in Barcelona in November 2019, Yaffa Serur (Psychiatric Division of Children and Adolescents – Sheba Medical Center) covered the impact of the environment…
-
At the 3 rd international conference on 22q11 in Barcelona in November 2019, Clémence Feller (University of Geneva) addressed the issue of projection in the future with individuals with 22q11DS.…
-
Kim’s testimony, Mika’s mother and founder of “Support 22q11 Foundation” Birth There I was, full of emotions but without the child that I had just brought into the world. Mika…
-
At the 3 rd international conference on 22q11 in Barcelona in November 2020, Ronnie Weinberger (Sheba Medical Center – Tel Aviv University) addressed the issue of validating cognitive studies with…