Kim’s testimony, Mika’s mother and founder of “Support 22q11 Foundation” Birth There I was, full of emotions but without the child that I had just brought into the world. Mika…
News
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At the 3 rd international conference on 22q11 in Barcelona in November 2020, Ronnie Weinberger (Sheba Medical Center – Tel Aviv University) addressed the issue of validating cognitive studies with…
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We are very happy to announce that 22q11 Polska has joined 22q11 Europe! We are now 17 associations joining their efforts in order to promote the cross-border exchange of people…
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At the 3rd international conference on 22q11 in Barcelona, Eva Micol (Université de Genève) presented her works on sexuality in the 22q11.2DS. Sexuality is a major concern among parents of…
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At the 3rd international conference on 22q11 in Barcelona, Dr. Mariela Mosheva and Prof. Doron Gothelf (Sheba Medical Center) presented their works on drug treatments for individuals with 22q11 with…
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In a presentation at the 3rd international conference on 22q11 in Barcelona, Johanna Maeder (University of Geneva) addressed learning & memory in 22q11.2 deletion syndrome. https://youtu.be/UghLCY0e2K4 The hippocampus is a…
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At the 3rd international conference on 22q11 in Barcelone, Joëlle Bagautdinova – van der Molen covered the topic of white matter development in 22q11.2 Deletion Syndrome. The brain is made…
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Hi ! My name is Hanna, and I have 22q11ds. I only found out that I had this syndrome when I gave birth to my eldest daughter, at the age…
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During a keynote speech at the 3rd international conference on 22q11 in Barcelone, Dr. Jaume Morey Canyelles covered topics on sleep disturbances in general and with 22q11. https://youtu.be/rcf3JHibGbk What is…
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During a keynote speech at the 3rd international conference on 22q11 in Barcelone, Dr. Emilie Favre shared her research on cognitive remediation for 22q11. https://youtu.be/np8bjWA8adc Weaknesses The speaker first outlined…