Hello, My name is Audrey and my husband is Sebastien. We are the parents of a 5 year old little boy, named Jonas. We learned that he was a carrier…
News
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Hello, my name is Gwenaelle, I’m 29 years old and I’ve been lucky enough to have two children (and the best choice): a 7 year old boy, Enzo, and a…
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Charlotte was the 3rd born child, 1st girl and was the last piece of our family puzzle. She was born at 40 weeks no complications. Initially as a newborn i…
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You can still register for the 4th European 22q11 Congress! Registration link After a long time of only virtual encounters and lockdown, the 4th European 22q11 Congress will take place…
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My name is Nathalie and my companion Samuel and I have a three year old boy, Andrea, who has the 22q11 deletion syndrome. We found out about it on the…
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We are very happy to announce that Stichting Steun 22q11 has joined 22q11 Europe! Stichting Steun 22q11 raises awareness about 22q11 in the Netherlands, through information, events, projects and contributions to…
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My name is Rachel, I am 29 years old. I am from Dunkirk, France. My syndrome was recognized at birth following congenital abnormalities called Tetralogy of Fallot. These caused long…
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Today, we are extremely happy and proud to share with you the news that Anna Maria (Ania) Fiksinski has obtained the grade of Ph.D in psychology from UMC Utrecht (Utrecht…
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Hello, my name is Claire, I am 42 years old. I have been living in Tours, France, for 2 years now, and I have been in a relationship for 10…
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On 22 November, Europe was lit up in red on 22q11 Day! Many European cities and Philadephia USA took part in this day to raise awareness of the microdeletion syndrome.…